Based on a podcast sent to us by Donna Flynn we became aware that the National Institutes of Health sometimes reviews brain cancer patient's history and offers second opinions. We were able to find the right people to talk to and Howard A. Fine, M.D. (Chief, Neuro-Oncology Branch National Cancer Institute; National Institute of Neurological Disorders and Stroke and National Institutes of Health) has agreed to review Tom’s history and offer us his opinion on how to best proceed. Here is his profile online: http://ccr.cancer.gov/staff/staff.asp?profileid=5635
To do this we will need to fly to Bethesda, MD to meet with him and his team at the National Institutes of Health. We have been able to obtain an appointment on July 11, 2008. We will travel July 10 but have been able to set it up to return on the weekend. We have very mixed feelings about this opportunity but cannot pass up the opportunity to learn more.
This all seems to be going great. Tom feels fine and aside from hair loss made it through radiation well. Thursday we have an appointment with Dr. Kew his oncologist and the chemo starts up again.
Thank you for your thoughts and prayers.
Love, Theresa
1 comment:
Thank you for keeping us updated!
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