Monday, September 29, 2008
Update 9/28/08 - Little Drummer
Dear Friends,
Once again with the help of Gerry Manacsa and Sam Larch there is a video posting on this blog. Attached please find a video Tom made back in Christmas of 1999. It cracks me up every time I see it.
I hope you enjoy.
Please keep Tom in your prayers.
Love Theresa
Friday, September 19, 2008
Update 9/19/08
It sure has been a wild two weeks (but thankfully not bad at all). Tom managed to get blood work and an MRI done right before the storm so there was no delay in that regard. His radiation did get interrupted for 2-3 days but he is back on track again. Methodist does have a machine down however so his appointments are taking a lot longer than usual. If you are bored at 2 p.m. weekdays send Tom a text. I know he is just sitting there trying to stay busy!
We don't have power yet...it has been over a week. We are really doing great. It is forcing us to brush up on the "ol' cooking on a camp stove" skills and wearing head lamps. Tom is sleeping great and getting good fresh air.
We are both working like crazy. Please keep Tom in your continued prayers.
Love Theresa
We don't have power yet...it has been over a week. We are really doing great. It is forcing us to brush up on the "ol' cooking on a camp stove" skills and wearing head lamps. Tom is sleeping great and getting good fresh air.
We are both working like crazy. Please keep Tom in your continued prayers.
Love Theresa
Wednesday, September 3, 2008
Update 9/3/08
Hi Friends,
Today Tom went in for his "simulation." It is when they fit his new mask for radiation. Thanks to the very huge efforts of his doctors and a terrific woman named Lupe, BCBS finally gave permission and Tom was able to move forward in his treatment. Generally they have been a good insurance company but do not like to pay for radiation. Keep that in mind for a weird game of bar room medial trivia.
Radiation will start next week. We are happy and blessed and in love and eating well.
Please keep us in your prayers.
Love Theresa
Today Tom went in for his "simulation." It is when they fit his new mask for radiation. Thanks to the very huge efforts of his doctors and a terrific woman named Lupe, BCBS finally gave permission and Tom was able to move forward in his treatment. Generally they have been a good insurance company but do not like to pay for radiation. Keep that in mind for a weird game of bar room medial trivia.
Radiation will start next week. We are happy and blessed and in love and eating well.
Please keep us in your prayers.
Love Theresa
Thursday, August 28, 2008
Update 8/28/2008
Hi friends,
A while back Tom created this very cool video of his last radiation treatment. I was unable to load it onto the blog (user error!) at the time. With the help of webmaster Gerry Manacsa it is now loaded.
Please enjoy the visual of what Tom is about to start again (ironic isn't it?).
Love Theresa
A while back Tom created this very cool video of his last radiation treatment. I was unable to load it onto the blog (user error!) at the time. With the help of webmaster Gerry Manacsa it is now loaded.
Please enjoy the visual of what Tom is about to start again (ironic isn't it?).
Love Theresa
Wednesday, August 27, 2008
Update 8-27-08
Hi friends,
Well it turns out Tom's cancer cells are quite persistent. They have gone on a voyage and crossed to the other side of his brain. They are trying to set up a neighborhood but luckily we are smarter than they are.
There are four tumors growing. The largest is 1.6 cm which a far sight smaller than his original one which was 4 cm. We are completely lucky that they are on the other side of the brain which makes Tom eligible for radiation. He will start another 30 days of treatment within a week or so to knock the life out of those little buggers.
I must say the yucky cells are getting annoying so please focus your thoughts and prayers on a complete and total cure for Tom. We are wishing for a total cure by Christmas and to do that we will need your help.
Of course we also have great help from Tom's doctors and associated team. Here is a picture of Tom getting an infusion of Avasin which is new drug designed to stop leaking blood vessels (a side effect of both tumors and radiation necrosis). It went well.
Tom is happy, staying fit, working way too many hours, and sleeping well at night. We are blessed.
Love Theresa
Well it turns out Tom's cancer cells are quite persistent. They have gone on a voyage and crossed to the other side of his brain. They are trying to set up a neighborhood but luckily we are smarter than they are.
There are four tumors growing. The largest is 1.6 cm which a far sight smaller than his original one which was 4 cm. We are completely lucky that they are on the other side of the brain which makes Tom eligible for radiation. He will start another 30 days of treatment within a week or so to knock the life out of those little buggers.
I must say the yucky cells are getting annoying so please focus your thoughts and prayers on a complete and total cure for Tom. We are wishing for a total cure by Christmas and to do that we will need your help.
Of course we also have great help from Tom's doctors and associated team. Here is a picture of Tom getting an infusion of Avasin which is new drug designed to stop leaking blood vessels (a side effect of both tumors and radiation necrosis). It went well.
Tom is happy, staying fit, working way too many hours, and sleeping well at night. We are blessed.
Love Theresa
Friday, July 18, 2008
Update 7/17/08
Hi Friends,
Today we met with Tom's Houston oncologist and Tom has decided to stay on his current chemo treatment.
Since things are so stable now I think the blog postings will become less frequent but if anything changes we will let you know. As always good thoughts and prayers are requests.
Love Theresa
Today we met with Tom's Houston oncologist and Tom has decided to stay on his current chemo treatment.
Since things are so stable now I think the blog postings will become less frequent but if anything changes we will let you know. As always good thoughts and prayers are requests.
Love Theresa
Friday, July 11, 2008
Update 7/11/08
Hi everyone,
It is late but wanted to give you an update. Today's NIH visit went great. There are some tax dollars being well spent!
We met with several amazing neuro oncologists (including Dr. Fine) who reviewed all of Tom's records and scans. There was general agreement that so far we have had excellent care but Tom was invited to join in one of three studies. The studies take the same basic approach we have been using but use new (and hopefully) more aggressive drugs. The drugs are all experimental so we can only use them in a study situation. Alternatively we can continue with the care we have been getting using an experimental protocol with more traditional drugs.
We have a lot to think and pray about but are excited about the second opinion and new options. We are meeting with our Houston oncologist, Dr. Kew Monday so we can discuss what we learned.
Thank you for your continued interest and support. We will be home soon!
Love Theresa
It is late but wanted to give you an update. Today's NIH visit went great. There are some tax dollars being well spent!
We met with several amazing neuro oncologists (including Dr. Fine) who reviewed all of Tom's records and scans. There was general agreement that so far we have had excellent care but Tom was invited to join in one of three studies. The studies take the same basic approach we have been using but use new (and hopefully) more aggressive drugs. The drugs are all experimental so we can only use them in a study situation. Alternatively we can continue with the care we have been getting using an experimental protocol with more traditional drugs.
We have a lot to think and pray about but are excited about the second opinion and new options. We are meeting with our Houston oncologist, Dr. Kew Monday so we can discuss what we learned.
Thank you for your continued interest and support. We will be home soon!
Love Theresa
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